Når diagnosen trækker ud. Livskvalitet hos kvinder med sen diagnostiseret endometriose

Resumé

Baggrund
Endometriose rammer ca. 10 % af fertile kvinder, og diagnosen kan forsinkes i op til 11 år, hvilket medfører vedvarende smerter og gentagne kontakter til sundhedsvæsenet.

Formål
At undersøge hvordan kvinder med sen diagnostisering af endometriose oplever sygdommens betydning for deres livskvalitet.

Metode
Kvalitativ undersøgelse baseret på tre semi-strukturerede interviews analyseret med tematisk analyse inspireret af Braun & Clarke.

Fund
Tre temaer blev identificeret:
1. Normalisering af smerter, som bidrager til forsinket diagnose.
2. Et fragmenteret sundhedsvæsen med manglende kontinuitet.
3. Livskvalitet under konstant tilpasning med begrænsninger i hverdagsliv, relationer og intimitet.

Delayed diagnosis and its impact on quality of life in women with endometriosis

Lotte Jørgensen, Hnin Yee, Susanne Welløv & Louise Thuen. louise.schmith.thuen@gmail.com UCN University College, Nursing Programme Hjørring. Submitted 05.05.2026. Supervisor: Frida Skytt.

Abstract

Background
Endometriosis affects about 10% of women of reproductive age, and diagnosis may be delayed up to 11 years, leading to persistent pain and repeated healthcare contacts.

Aim
To explore how women with delayed diagnosis of endometriosis perceive it's impact on quality of life.

Method
Qualitative study based on three semi-structured interviews analysed using thematic analysis inspired by Braun & Clarke.

Results
Three themes emerged:
1. Normalisation of pain contributing to delay
2. A fragmented healthcare system lacking continuity
3. Quality of life under constant adjustment, affecting daily activities, social relations, and intimacy.