{"id":9699,"date":"2024-10-10T19:07:13","date_gmt":"2024-10-10T17:07:13","guid":{"rendered":"https:\/\/sygeplejevidenskab.dk\/?p=9699"},"modified":"2026-05-13T15:37:03","modified_gmt":"2026-05-13T13:37:03","slug":"9699","status":"publish","type":"post","link":"https:\/\/sygeplejevidenskab.dk\/index.php\/2024\/10\/10\/9699\/","title":{"rendered":"Udeboende b\u00f8rn som p\u00e5r\u00f8rende \u2013 N\u00e5r far er syg"},"content":{"rendered":"
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Af Emilie Christine Sommer-Lykke<\/span>1 <\/span><\/strong>Helle Farsinsen Gundorff Nielsen<\/span>2<\/span><\/strong> Camilla Lykke<\/span>3
\n<\/span><\/strong><\/p>\n

1<\/strong> Sygeplejerske, Forskningsassistent, COPSAC, Copenhagen Prospective Studies on Asthma in Childhood, Herlev-Gentofte Hospital, Gentofte. <\/span>emilie.christine.sommer-lykke@regionh.dk<\/a>
\n2 <\/span><\/strong>Sygeplejerske, Lektor, UC Diakonissestiftelsen, Frederiksberg
\n<\/span>3 <\/span><\/strong>Sygeplejerske, ph.d., Postdoc, Afdeling for Lindrende Behandling, Rigshospitalet, K\u00f8benhavn og Onkologisk og Palliativ Afdeling, Nordsj\u00e6llands Hospital, Hiller\u00f8d<\/span><\/p>\n

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Resum\u00e9<\/strong>
\nBaggrund
\n<\/span><\/strong>Udeboende b\u00f8rn som p\u00e5r\u00f8rende til en alvorlig syg for\u00e6lder er en s\u00e5rbar og overset gruppe.
\n<\/span>Form\u00e5l
\n<\/span><\/strong>At unders\u00f8ge hvilke behov patienter med uhelbredelig tarmkr\u00e6ft og deres udeboende b\u00f8rn i alderen 18-28 \u00e5r har for st\u00f8tte og inddragelse i f\u00e6drenes sygdomsforl\u00f8b, og hvordan sygeplejesker kan st\u00f8tte dem.
\n<\/span>Metode
\n<\/span><\/strong>Et kvalitativt studie indeholdende tre semistrukturerede interviews med tre mandlige patienter med uhelbredelig tarmkr\u00e6ft.
\n<\/span>Resultater
\n<\/span><\/strong>Projektet viser fem temaer:
\n<\/span>\u201dDen mandlige patient - N\u00e5r far er syg\u201d, \u201dUsynlig sygdom\u201d, \u201d\u00c5ben og \u00e6rlig kommunikation\u201d, \u201dFor\u00e6ldreskab som st\u00f8rste bekymring\u201d, \u201dMit barns behov\u201d.<\/em>
\n<\/span>Konklusion
\n<\/span><\/strong>Patienterne har behov for \u00e5ben og \u00e6rlig kommunikation med deres b\u00f8rn om sygdommen, men oplever bekymring forbundet med \u00e6rligheden. Et paradoks ses mellem patientens behov for at bevare normaliteten og deres b\u00f8rns behov for information. Manglende tilb\u00f8jelighed til at tage imod tilbud om st\u00f8tte og vejledning, kan v\u00e6re k\u00f8nsbetinget. Sundhedsprofessionelle har ansvaret for at identificere de udeboende b\u00f8rn og deres behov samt formidle tilbud om st\u00f8tte.<\/span><\/p>\n

N\u00f8gleord: <\/span><\/strong>Kommunikation, palliativ indsats, tarmkr\u00e6ft, udeboende b\u00f8rn, p\u00e5r\u00f8rende inddragelse, uhelbredelig sygdom.<\/span><\/p>\n

English abstract<\/b><\/span><\/p>\n

Young adults as relatives - When dad is sick<\/span><\/strong><\/span><\/h4>\n


\nIntroduction
\n<\/strong>The article sheds light on the needs of fathers with incurable bowel cancer and their non-resident children for involvement in the disease, potentially inspiring new approaches and solutions in the field. The impact of gender on the propensity to accept offers of support, with men often being less likely to seek help, and how this can affect the involvement of children living away from home. The article presents concrete examples of development initiatives in practice, offering a beacon of hope in meeting the information and involvement needs of male patients and their non-resident children.<\/p>\n

Background: <\/span><\/strong>Young adults as relatives of seriously ill parents are vulnerable and overlooked.
\n<\/span>Aim: <\/span><\/strong>To investigate the needs of support related to involvement of young adults aged 18-28 whose parents are living with incurable bowel cancer.
\n<\/span>Method: <\/span><\/strong>A qualitative study using semi-structured interviews with three males diagnosed with incurable bowel cancer.
\n<\/span>Findings: <\/span><\/strong>The study resulted in five themes: \"The male patient - When dad is sick\"<\/em>, \"Invisible illness\", \"Open and honest communication\", \"Parenthood as the biggest concern \", \"The needs of my child\".<\/em>
\n<\/span>Conclusion: <\/span><\/strong>Patients want open and honest communication with their children about the disease. However, they have concerns about their honesty. A paradox is found between the patient's need to maintain normality and their children\u2019s need for information. An unwillingness to accept offers of support and guidance may be gendered. Healthcare professionals are responsible for identifying the needs of young adults whose parents are critically ill.
\n<\/span>
\nKeywords: <\/span><\/strong>Communication, palliative care, bowel cancer, young adults, involvement of relatives, incurable disease<\/span><\/p>\n<\/div>\n<\/div>\n

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