{"id":25514,"date":"2026-07-08T11:51:13","date_gmt":"2026-07-08T09:51:13","guid":{"rendered":"https:\/\/sygeplejevidenskab.dk\/?p=25514"},"modified":"2026-07-08T11:51:13","modified_gmt":"2026-07-08T09:51:13","slug":"naar-diagnosen-traekker-ud-livskvalitet-hos-kvinder-med-sen-diagnostiseret-endometriose","status":"publish","type":"post","link":"https:\/\/sygeplejevidenskab.dk\/index.php\/2026\/07\/08\/naar-diagnosen-traekker-ud-livskvalitet-hos-kvinder-med-sen-diagnostiseret-endometriose\/","title":{"rendered":"N\u00e5r diagnosen tr\u00e6kker ud. Livskvalitet hos kvinder med sen diagnostiseret endometriose"},"content":{"rendered":"

\"\"<\/p>\n

Lotte J\u00f8rgensen, Hnin Yee, Susanne Well\u00f8v & Louise Thuen.<\/span> louise.schmith.thuen@gmail.com <\/a>UCN Campus Skolevangen, Hj\u00f8rring.<\/span> BA-projekt afleveret 05.06.26. Vejleder: Frida Skytt.<\/span><\/p>\n

DOWNLOAD RESUM\u00c9<\/a><\/p>\n

DOWNLOAD BA-PROJEKTET<\/a><\/p>\n

\n

Resum\u00e9<\/span><\/strong><\/p>\n

Baggrund
\n<\/span><\/strong>Endometriose rammer ca. 10 % af fertile kvinder, og diagnosen kan forsinkes i op til 11 \u00e5r, hvilket medf\u00f8rer vedvarende smerter og gentagne kontakter til sundhedsv\u00e6senet.<\/p>\n

Form\u00e5l
\n<\/span><\/strong>At unders\u00f8ge hvordan kvinder med sen diagnostisering af endometriose oplever sygdommens betydning for deres livskvalitet.<\/span><\/p>\n

Metode
\n<\/span><\/strong>Kvalitativ unders\u00f8gelse baseret p\u00e5 tre semi-strukturerede interviews analyseret med tematisk analyse inspireret af Braun & Clarke.<\/span><\/p>\n

Fund
\n<\/span><\/strong>Tre temaer blev identificeret:
\n<\/span>1. Normalisering af smerter, som bidrager til forsinket diagnose.
\n<\/span>2. Et fragmenteret sundhedsv\u00e6sen med manglende kontinuitet.
\n<\/span>3. Livskvalitet under konstant tilpasning med begr\u00e6nsninger i hverdagsliv, relationer og intimitet.<\/span><\/p>\n

Konklusion
\n<\/span><\/strong>Sygdommen p\u00e5virker livskvaliteten fysisk, psykisk og socialt. Diagnostisk forsinkelse forv\u00e6rrer belastningen og understreger behovet for tidligere opsporing og bedre sammenh\u00e6ng i patientforl\u00f8b.<\/span><\/p>\n

Implikationer for praksis
\n<\/span><\/strong>Unders\u00f8gelsen peger p\u00e5 et klart behov for mere sammenh\u00e6ngende, koordinerede og tv\u00e6rfaglige forl\u00f8b i diagnosticering, behandling og rehabilitering af kvinder med endometriose. Sygeplejersker kan her indtage en central rolle som koordinatorer, der underst\u00f8tter kontinuitet, f\u00e6lles m\u00e5l og klar ansvarsplacering p\u00e5 tv\u00e6rs af faggrupper og sektorer. Tv\u00e6rfaglige l\u00e6rings- og undervisningsforl\u00f8b, faste kontaktpersonordninger og struktureret patientundervisning kan styrke kvindernes forst\u00e5else, handlemuligheder og livskvalitet, samtidig med at relationel koordinering og didaktiske rammer anvendes systematisk til at udvikle patientsikre indsatser af h\u00f8j kvalitet.<\/span><\/p>\n

 <\/p>\n

Delayed diagnosis and its impact on quality of life in women with endometriosis
\n<\/span><\/h4>\n

Lotte J\u00f8rgensen, Hnin Yee, Susanne Well\u00f8v & Louise Thuen.<\/span> louise.schmith.thuen@gmail.com <\/a>UCN University College, Nursing Programme Hj\u00f8rring. Submitted 05.05.2026. Supervisor: Frida Skytt.<\/span><\/p>\n

Abstract<\/span><\/strong><\/p>\n

Background
\n<\/span><\/strong>Endometriosis affects about 10% of women of reproductive age, and diagnosis may be delayed up to 11 years, leading to persistent pain and repeated healthcare contacts.<\/span><\/p>\n

Aim
\n<\/span><\/strong>To explore how women with delayed diagnosis of endometriosis perceive it’s impact on <\/span>quality of life.<\/span><\/p>\n

Method
\n<\/span><\/strong>Qualitative study based on three semi-structured interviews analysed using thematic <\/span>analysis inspired by Braun & Clarke.<\/span><\/p>\n

Results
\n<\/span><\/strong>Three themes emerged:
\n<\/span>1.<\/span> Normalisation of pain contributing to delay
\n<\/span>2.<\/span> A fragmented healthcare system lacking continuity
\n<\/span>3.<\/span> Quality of life under constant adjustment, affecting daily activities, social relations, and intimacy.<\/span><\/p>\n

Conclusion
\n<\/span><\/strong>Endometriosis has physical, psychological, and social impacts on quality of life. Diagnostic delay intensifies these burdens and highlights the need for earlier recognition and more coherent care pathways.<\/span><\/p>\n

Implications for practice
\n<\/span><\/strong>The study points to a clear need for more coherent, coordinated, and interdisciplinary care pathways in the diagnosis, treatment, and rehabilitation of women with endometriosis. Nurses can take on a central role as coordinators who support continuity, shared goals, and clear allocation of responsibilities across professional groups and sectors. Interdisciplinary learning and educational programmes, designated contact persons, and structured patient education may strengthen women\u2019s understanding, agency, and quality of life, while relational coordination and didactic frameworks are used systematically to develop safe, high-quality interventions.<\/span><\/p>\n

 <\/p>\n<\/div>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Lotte J\u00f8rgensen, Hnin Yee, Susanne Well\u00f8v & Louise Thuen. louise.schmith.thuen@gmail.com UCN Campus Skolevangen, Hj\u00f8rring. BA-projekt afleveret 05.06.26. Vejleder: Frida Skytt. 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