{"id":22608,"date":"2026-01-06T18:46:24","date_gmt":"2026-01-06T17:46:24","guid":{"rendered":"https:\/\/sygeplejevidenskab.dk\/?p=22608"},"modified":"2026-01-08T10:24:26","modified_gmt":"2026-01-08T09:24:26","slug":"enhancing-pediatric-care-using-prems-to-capture-children-and-adolescents-healthcare-experiences","status":"publish","type":"post","link":"https:\/\/sygeplejevidenskab.dk\/index.php\/2026\/01\/06\/enhancing-pediatric-care-using-prems-to-capture-children-and-adolescents-healthcare-experiences\/","title":{"rendered":"Enhancing Pediatric Care: Using PREMs to Capture Children and Adolescents\u2019 Healthcare Experiences"},"content":{"rendered":"<div class=\"wc_ppp_paywall wc_ppp_paywall_22608\"><div class=\"elementor-text-editor\">\n<p><img data-recalc-dims=\"1\" class=\"alignnone wp-image-22609 size-full\" src=\"https:\/\/i0.wp.com\/sygeplejevidenskab.dk\/wp-content\/uploads\/2026\/01\/Illlustration.png?resize=700%2C215&#038;quality=85&#038;ssl=1\" alt=\"\" width=\"700\" height=\"215\" \/><\/p>\n<p><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Anne Marie Ryberg <\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none font-size-modifier vertical-align\">1<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\"> and Claus Sixtus Jensen <\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none font-size-modifier vertical-align\">2<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">.<\/span><\/p>\n<p class=\"cvGsUA direction-ltr align-start para-style-body\"><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">1 <\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Master of Clinical Nursing, Project nurse, RN, Department of Paediatrics and Adolescent Medicine, Aarhus University Hospital, Denmark.<\/span> <a class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\" href=\"mailto:annenils@rm.dk\" target=\"_blank\" rel=\"noopener\">annenils@rm.dk<\/a><br \/>\n<span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\"><strong>2<\/strong> <\/span><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">RN, MHSc(Nurs), PhD, MEANS, Clinical Nurse Specialist and Associate Professor in Children\u2019s Nursing. Research Centre for Emergency Medicine, Emergency Department, Aarhus University Hospital, Aarhus, Denmark. Department of Clinical Medicine, Aarhus University, Aarhus, Denmark. Department of Paediatrics and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark.<\/span> <a class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\" href=\"mailto:claus.sixtus@skejby.rm.dk\" target=\"_blank\" rel=\"noopener\">claus.sixtus@skejby.rm.dk<\/a><\/p>\n<div class=\"farve-boks\" style=\"border: 10px solid #bfe6f6;padding: 16px 32px;border-radius: 24px;color: black;margin-bottom: 32px\">\n<p class=\"cvGsUA direction-ltr align-justify para-style-body\"><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\"><strong>Abstract<\/strong><br \/>\n<\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Introduction<br \/>\n<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Patient-reported experience measures (PREMs) are valuable instruments for capturering patient feedback but often miss the perspectives of children and adolescents. Research indicates that parental proxies do not fully reflect children\u2019s and adolescents\u2019 experiences. The World Health Organization and other authorities emphasize the need to include youth in healthcare evaluations. This pilot study aimed to assess the practicality of using the PREM, titled \u201cWhat do you think about the hospital? Help us get better\u201d in a Danish Children and Adolescent Outpatient Clinic. The study focused on understanding the challenges and opportunities associated with using this instrument to gather feedback from children and adolescents on their healthcare experiences.<br \/>\n<\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Methods<br \/>\n<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">A total of 356 PREMs were collected and analyzed using thematic analysis and descriptive statistics. Thematic analysis identified patterns in openended responses, while descriptive statistics summarized key demographic variables such as age and gender. Data was systematically transferred to the REDCap database for accuracy, with oversight from the first author.<br \/>\n<\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Results<br \/>\n<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">The study found that PREM effectively captured valuable insights into the experiences of children and adolescents, highlighting key areas for improvement in pediatric care. The findings suggest that PREM can be a useful instrument for identifying gaps in communication and engagement, particularly among adolescents, and for fostering a greater sense of control over their healthcare.<br \/>\n<\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Conclusions<br \/>\n<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">This study shows that current PREM can provide meaningful assessments of child and adolescents experiences within the Danish healthcare system. While the findings are specific to the units involved, they suggest that PREM could be a valuable instrument in clinical practice for assessing and improving communication, care environments, and transitions for adult care. Further research in a broader range of settings is needed to confirm its applicability across different healthcare environments.<br \/>\n<\/span><strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Clinical Relevance<br \/>\n<\/span><\/strong><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">Children\u2019s and adolescents' feedback provides clinically relevant insights into areas for improvement in pediatric care, especially in communication, engagement, and the care environment. PREM could serve as a valuable instrument for ongoing feedback and continuous improvement in pediatric clinical practice.<\/span><\/p>\n<p class=\"cvGsUA direction-ltr align-justify para-style-body\"><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\"><strong>Keywords<\/strong>: <\/span><span class=\"a_GcMg font-feature-liga-off font-feature-clig-off font-feature-calt-off text-decoration-none text-strikethrough-none\">PREM, children, adolescents, patient experience, healthcare communication, transition to adult care, patient feedback.<\/span><\/p>\n<\/div>\n<p>&nbsp;<\/p>\n<\/div>\n<div data-elementor-type=\"single-page\" data-elementor-id=\"19154\" class=\"elementor elementor-19154\" data-elementor-post-type=\"elementor_library\">\n<div class=\"elementor-element elementor-element-2cd49e3 e-con-full jedv-enabled--yes e-flex e-con e-child\" data-id=\"2cd49e3\" data-element_type=\"container\" 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