![\"\"](\"https:\/\/sygeplejevidenskab.dk\/wp-content\/uploads\/2025\/08\/Nefrologi-og-urinveje.png\")
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Handberg C, Kristensen B, Jensen BT, Glerup S, Pharao AV, Str\u00f8m J, Werlauff U. Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home. Glob Qual Nurs Res. 2024 Jun 24;11:23333936241262445. doi: 10.1177\/23333936241262445. PMID: 39045039; PMCID: PMC11265239.<\/a> Werlauff U, Handberg C, Kristensen B, Glerup S, Pharao AV, Str\u00f8m J, Jensen BT. HAP-PEE: A Danish National Study of Challenges Related to Urinating When Away from Home in Women with Neuromuscular Diseases, Impact on Activity and Participation and Prevalence of Lower Urinary Tract Symptoms. J Neuromuscul Dis. 2024;11(4):829-838. doi: 10.3233\/JND-230241. PMID: 38820020; PMCID: PMC11307087.<\/a><\/p>\n Download Resume som pdf<\/a><\/p>\n Af Charlotte Handberg, Professor, PhD, RN, <\/span>chha@rcfm.dk<\/a> Ulla Werlauff, Forskningsleder, PhD, PT <\/span>ulwe@rcfm.dk<\/a> <\/em><\/p>\n Resum\u00e9 Metode Resultater Mange kvinder oplever sociale begr\u00e6nsninger, som n\u00f8dvendigg\u00f8r at uddannelse og arbejde placeres t\u00e6t p\u00e5 hjemmet. Over halvdelen rapporterer, at de begr\u00e6nser v\u00e6skeindtag og lavede \u2018tissmatematik, for at undg\u00e5 toiletbes\u00f8g, hvilket \u00f8ger risikoen for dehydrering og bl\u00e6reproblemer. Trods alvorlige konsekvenser har kun f\u00e5 dr\u00f8ftet problemet med sundhedsprofessionelle, og henvisninger til relevant urologisk vejledning er sj\u00e6ldne.<\/span><\/p>\n Konklusion Implikationer for klinisk praksis I forbindelse med projektet blev der lavet et screeningsv\u00e6rkt\u00f8j til sundhedsprofessionelle, s\u00e5 problemer med at komme p\u00e5 toilettet kan identificeres og adresseres.<\/p>\n Screeningsv\u00e6rkt\u00f8jet kan hentes og printes fra RehabiliteringCenter<\/em> for Muskelsvinds<\/em> hjemmeside <\/span>Screeningsvaerktoej.pdf<\/a>, hvor man ogs\u00e5 kan l\u00e6se mere om projektet: <\/span>At kunne tisse, n\u00e5r man skal – RCFM<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Handberg C, Kristensen B, Jensen BT, Glerup S, Pharao AV, Str\u00f8m J, Werlauff U. Challenges Faced by Women With Neuromuscular […]<\/p>\n","protected":false},"author":1,"featured_media":18919,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_ppp_document_settings_meta":"","site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[13,162],"tags":[],"class_list":["post-18916","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-resume-af-forskning","category-sygdomsspecifikke-omraader-resume-af-forskning"],"acf":[],"jetpack_featured_media_url":"https:\/\/sygeplejevidenskab.dk\/wp-content\/uploads\/2025\/08\/Urinveje.png","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/posts\/18916","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/comments?post=18916"}],"version-history":[{"count":4,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/posts\/18916\/revisions"}],"predecessor-version":[{"id":18928,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/posts\/18916\/revisions\/18928"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/media\/18919"}],"wp:attachment":[{"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/media?parent=18916"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/categories?post=18916"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sygeplejevidenskab.dk\/index.php\/wp-json\/wp\/v2\/tags?post=18916"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\n<\/span><\/strong>Baggrund
\n<\/span><\/strong>Det kan v\u00e6re en stor udfordring for kvinder med muskelsvind at bruge toilettet uden for eget hjem, fordi mange toiletter er sv\u00e6rt tilg\u00e6ngelige og forflytning er besv\u00e6rlig eller umulig. Konsekvenserne er omfattende og p\u00e5virker bl\u00e6resundhed, samt kvindernes mulighed for aktivitet og deltagelse i samfundslivet.<\/span><\/p>\n
\n<\/span><\/strong>Projektet fra RehabiliteringsCenter<\/em> for Muskelsvind<\/em> unders\u00f8gte disse udfordringer gennem fokusgruppeinterview med 12 kvinder, en sp\u00f8rgeskemaunders\u00f8gelse med 692 deltagere samt et pilotstudie, hvor 10 kvinder afpr\u00f8vede forskellige hj\u00e6lpemidler til vandladning uden for hjemmet.<\/span><\/p>\n
\n<\/span><\/strong>Det kan v\u00e6re en stor udfordring at g\u00e5 i byen, tage p\u00e5 arbejde eller v\u00e6re social med venner og familie. F\u00f8r ture, opgaver og arrangementer uden for hjemmet bruges megen tid og energi p\u00e5 at unders\u00f8ge, om der er et handicaptoilet i n\u00e6rheden af bestemmelsesstedet, og om dette er indrettet, s\u00e5 et toiletbes\u00f8g er muligt. Utilstr\u00e6kkelig adgang<\/span> f\u00f8rer ofte til stigmatisering og tab af v\u00e6rdighed, fx ved behov for hj\u00e6lp til toilettet. <\/span><\/p>\n
\n<\/span><\/strong>Tilg\u00e6ngelige hj\u00e6lpemidler som tissetragte og urinposer kan lette vandladning, men kr\u00e6ver god h\u00e5ndfunktion og balance, hvilket ikke alle har. <\/span>Problematikken er underbelyst b\u00e5de blandt sundhedsprofessionelle og brugerne, som sj\u00e6ldent bringer emnet op, og sundhedspersonalet har ofte mangel p\u00e5 viden om muskelsvindens indvirkning p\u00e5 toilettilg\u00e6ngelighed.<\/span><\/p>\n
\n<\/span><\/strong>Vanskeligheder med at kunne komme p\u00e5 toilettet andre steder end hjemme er relevant for mange kvinder med p\u00e5virket fysisk funktion uanset grundsygdom, og viden om problematikken b\u00f8r bredes ud til de sundhedsprofessionelle, som m\u00f8der og r\u00e5dgiver kvinderne i mange situationer i sundhedsv\u00e6senet. <\/span><\/p>\n